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There are many organisations offering support, advice and resources for families who have a child or young adult with Down syndrome. You may find the links below useful.

Down's Syndrome Association

Helping people with Down Syndrome to live full and rewarding lives.

Leeds Mencap

Services and activities to improve the lives and opportunities of children and adults with a learning disability along with their families and carers.

Down Syndrome Training and Support Service

Support for children, young people and their families in Bradford and the surrounding area. Training for professionals, parents and carers in the specific learning needs of children and young people with Down Syndrome.

Children's Heart Surgery Fund

A Leeds charity providing support for children born with Congenital Heart Defects and their families.

Down's Heart Group

A charity offering support and information relating to heart conditions associated with Down Syndrome.

21 Co.

A cafe & shop based in Leeds, run for and by people with Down Syndrome to offer training and work experience with the aim of creating job opportunities.


Makaton is a type of sign language to aid speech and is often used by people who have Down syndrome.

Down Syndrome Education International

An international charity that supports scientific research and delivers evidence-based advice and information to improve outcomes for children with Down syndrome worldwide.

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