Email Phone
Sunshine & Smiles

Responding to the Down Syndrome Act Consultation

The Down Syndrome Act consultation closes on 30th March.  Here’s how to have your voice heard.

Down Syndrome UK (DSUK) and the National Down Syndrome Policy Group (NDSPG) have produced an informative webinar on “Understanding the Down Syndrome Act consultation - and how to respond.”

In this webinar, Nicola Enoch (CEO, Down Syndrome UK) and Julie Duff (Chair, NDSPG) explain the latest updates on the Down Syndrome Act and what the draft consultation means for parents and carers. They break down what the draft guidance says, why it matters, and how families can give informed feedback to help shape national guidance. Clear, practical and accessible - designed to help you understand your rights and have your say with confidence.

Watch the full webinar here. 

They have also created a detailed guide to support families in responding to the consultation. It sets out DSUK’s response and recommendations, aligned to the DHSC consultation sections, to help parents formulate their own submissions. 13139 DSUK – Full Consultation Response to DHSC

Write to your MP.

NDSPG consultation guide.

More news articles

Babble Play Project

9th Mar 2026

The BabblePlay project involves testing a parent-led app designed to support early vocal development in babies with Down syndrome.

Read more...

World Down Syndrome Day 2026 resources

9th Mar 2026

World Down Syndrome Day 2026 is coming up on Friday 21st March!

Read more...

Understanding SEND Mediation

9th Mar 2026

Join the Leeds Parent Carer Forum for a free, informal online session delivered by Collis Mediation Limited, the commissioned SEND Mediation and Disagreement Resolution Provider.

Read more...

Sign up to our newsletter

Sunshine & Smiles will ensure your personal details are held securely to enable us to contact you moving forwards in line with our privacy notice.
We will never share them with anyone else. If you'd like to stop receiving our emails, please just contact us.