We have been contacted by Camilla Brooks, a Master͛s student from the Department of Special Needs Education at the University of Oslo, Norway. She is carrying out a research project regarding the quality of Education, Health and Care Plan (EHCP) outcomes for primary school students (aged 5 to 12) with Down Syndrome in both mainstream and special schools in England. She is looking for parents who have a child with Down syndrome to share the most recent copy of their childs EHCP via the University of Oslo's secure data sharing platform. All personal data will be anonymized, stored securely and handled in accordance with Norwegian ethics mandates.
All relevant information to participate has been published on the Down’s Syndrome Association website and can be found here. Information has also been published to a cooperating research blog and can be found here.
If you are interested in finding out more about the study, please read the information letter and consent statement. If you have questions or want to take part in the study please contact Camilla at firstname.lastname@example.org and she can direct you to where to upload the consent form.