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Online Consultation for Down syndrome Act

The National Down Syndrome Policy Group is delighted to announce that our online consultation for gathering information for the Down Syndrome Act is live and can be accessed here.

The NDSPG consultation is very important because it will help us collect information about the things that matter to people who have Down syndrome, their families, carers and professionals who support them. We will share some short videos with you made by people with Down syndrome and their families and ask a series of questions about different areas of life including education, employment healthcare and social care. The information we get from the NDPSG consultation will help us better understand what works well and the areas that need improving. We will share this information with the senior civil servants who are writing the Guidance that is required by the Down Syndrome Act (2022) which will have far-reaching consequences for those with Down syndrome. It is up to our community to tell them about our experiences, our ambitions and the things that work and the things that frustrate and make life harder than it needs to be.

We cannot emphasise enough the importance of this NDSPG consultation because we will not have the opportunity to provide evidence about life with Down syndrome in such a powerful way again. This is OUR moment, this is OUR opportunity to make a difference by making sure the guidance is powerful and effective.

For more information on this consultation, please see the FAQ on our latest newsletter.

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