Email Phone
Sunshine & Smiles

Down syndrome Act 2022 - Consultation Event

The Down syndrome Act 2022 is due to be passed into law. The government is currently consulting to understand what should be covered in this law.

There will be a consultation event on 1st November in Leeds (11am-2pm, likely)

NOTE: We currently do not have any details of the location or definite times. We will share more information as we get it!

This consultation will be an opportunity for adults with Down syndrome (over 18) to share their thoughts about what should be included in the act.

Hopefully, reasonable travel expenses will be paid for (TBC) and participants can bring with them a support worker or advocate. If you do not have anyone available to accompany you on the day, we can try to arrange someone to be there with you.

The National Down syndrome Policy Group (NDSPG) have offered a good will involvement grant of £50 for the adults, if that will help them to be able to come but this must be specifically requested.

PLEASE LET US KNOW: if you would be able to attend on this date and if you’d require support from us to attend. Please do this by emailing Ailith:

We hope that there will be a further consultation event for the families and carers of younger people and children with Down syndrome in the near future, however we have not yet been advised of one.

More news articles

Movember Thank You

27th Nov 2023

We’d like to give a shout out and a HUGE thank you to Joe Gray, who is doing “Movember’ to raise money for Sunshine & Smiles.


The Big Birthday Party - recap and thank yous!

27th Nov 2023

On Sunday, we held our annual celebration, and this year it was a Big Birthday Party to celebrate our 10 years as a registered charity.


SENDIASS Preparing for SEND meetings workshop

27th Nov 2023

Leeds SENDIASS are holding a FREE workshop for parents and carers to help them prepare for SEND meetings.


Sign up to our newsletter

Sunshine & Smiles will ensure your personal details are held securely to enable us to contact you moving forwards in line with our privacy notice.
We will never share them with anyone else. If you'd like to stop receiving our emails, please just contact us.