Eden Parsons is an undergraduate sociology student at the University of Sussex conducting research on the experiences of adult siblings of people with Down's Syndrome.
As a sibling of someone with Down's Syndrome herself, she feels that siblings can often be overlooked and there is a significant gap in academic literature about this group.
The research she will be conducting will be predominantly participant-led, which should hopefully be empowering for the participants and possibly also give an indication of additional support that could be offered.
The research will include an online questionnaire and then 1:1 follow-up interviews with a smaller group of willing participants.
You can find more information about the research here or contact Eden at esp22@sussex.ac.uk .
More news articles
8th Dec 2025
Following an increase in demands on service and workforce challenges resulting in a drop in statutory performance, Leeds City Council accessed its EHC assessment, plan, and annual review processes to identify key opportunities for change.
Read more...Webinars to help with Down Syndrome Act Consultation
8th Dec 2025
The Government Consultation on the Draft Guidance for the Down Syndrome Act is now open
Read more...Interplay Sensory Theatre - Drop-in Sessions
1st Dec 2025
Interplay Theatre has a lovely Sensory Open Day on Saturday 6th December based on the traditional tale of “The Elves and The Shoemaker”.
Read more...