Eden Parsons is an undergraduate sociology student at the University of Sussex conducting research on the experiences of adult siblings of people with Down's Syndrome.
As a sibling of someone with Down's Syndrome herself, she feels that siblings can often be overlooked and there is a significant gap in academic literature about this group.
The research she will be conducting will be predominantly participant-led, which should hopefully be empowering for the participants and possibly also give an indication of additional support that could be offered.
The research will include an online questionnaire and then 1:1 follow-up interviews with a smaller group of willing participants.
You can find more information about the research here or contact Eden at esp22@sussex.ac.uk .
More news articles
Made with Music OPEN inclusive ensemble
4th Apr 2025
OPEN is an inclusive ensemble in Leeds for anyone who might need extra support to make music with family and friends
Read more...Thank you, Churwell Primary School!
28th Mar 2025
We’d like to give a huge thank you to Churwell Primary School, who raised an amazing £581.50 for us on World Down Syndrome Day!
Read more...28th Mar 2025
We wanted to share a webinar from the NDSS (National Down Syndrome Society) on Down Syndrome Regression to help inform families
Read more...