About half of those with Down syndrome are born with a heart condition. Some conditions require ongoing monitoring while others require surgery.
Many families at Sunshine & Smiles have been through heart surgery with their little ones. If you're currently facing this, we are more than happy to put you in contact with others who may have experienced this.
Here are some useful links regarding heart conditions in children, particularly those with Down syndrome:
- The Down’s Syndrome Association's information on heart conditions in those with Down syndrome.
- Children’s Heart Surgery Fund - A Leeds charity providing support for children born with Congenital Heart Defects and their families.
- Down's Heart Group is a charity offering support and information about heart conditions associated with Down syndrome.
- Contact details for the Cardiac Liaison Nurses at Leeds Teaching Hospitals.
